Ext 1’s Shakil Pillay, a kind-hearted 12-year-old boy has spent his life battling a rare and severe heart condition, Fallot of Tetralogy, GLOBE POST recently visited the family for an exclusive interview, Mbali Nqubuka reports…
Born on 20 February 2012, Shakil underwent his first open-heart surgery at just eight weeks old and has since endured three more major surgeries. Despite these efforts, his pulmonary arteries remain critically small, and his heart continues to weaken under tremendous strain.
Doctors have now recommended a heart and double lung transplant as his only chance for survival – a daunting prospect given South Africa’s limited organ donation statistics.
Shakil’s parents Bruce and Raeesa Pillay, told Globe Post: “We were shattered when we learned of his condition. But we promised to give Shakil as normal a childhood as possible, no matter the challenges.”
In April 2023, Shakil’s health deteriorated further, forcing him to leave school. An emergency angiogram revealed his heart was failing and local surgeons confirmed there were no more surgical options available in South Africa. The family’s desperate search for international help led them to Boston Children’s Hospital, where doctors offered a potential life – saving procedure.The surgery comes with an estimated cost of $333,548.16 (over R6 million), excluding travel, accommodation, and post-operative care – far beyond the family’s means.
“This surgery could ease the pressure on his heart and give him a fighting chance,” said Bruce.
Determined to save their son, the Pillays have launched a fundraiser on BackaBuddy, where people can read Shakil’s full story and donate. “We are asking for your prayers, support and contributions to help Shakil make his dreams come true,” said Raeesa.
Despite his condition, Shakil continues to dream big. “Looking at him, you’d never know the battles he faces every day,” added Bruce.
“He is determined to grow up and make a difference in this world. Thank you and God bless,” Bruce and Raeesa concluded.
To support Shakil’s fight, visit his fundraiser on BackaBuddy and share his story.
